WHAT IS HEMOPHILIA? Hemophilia is the position of the blood not clotting enough and it is a characteristic illness from birth. The illness, which effects the patient, his/ her family and the society lifelong, shows itself with inner joint bleedings which may be impossible to stop ( the areas where the children hit easily gets bruised, especially knee, elbow and ankle joint bleedings). Hemophilia is certainly not an epidemic illness. The hemophilia illness, with its meaning of today, had been described in 1920 and patoganized in 1937. The frequency of the illness changes according to the types of the countries which is often seen as 1 in 10.000 male births. The number of the hemopilia patients is 4000 in Turkey, and 400.000 in all over the world. These patients lack the protein called factor 8 in their bloods which must certainly be available. It is obligatory that the medicine factor 8, which is obtained from the human blood, be injected to the patient from the vessel to prevent or stop the bleedings. The medicine in question is imported from abroad and is quite expensive ( a box of 500 units factor 8= $500). The lives of the patients who have no social security are in great danger. The patients who are not able to be cured may die of bleedings or they may get bodily handicapped through often joint bleedings.
WHO ARE WE?
Ege Hemophilia Society is the biggest hemophilia association of Turkey which celebrated the tenth service year in 2004. Its proper aim is to help the hemophilic patients and their families, and to enlighten the public opinion about the illness. The society, which was founded with ten promoter members by the leadership of Prof. Dr. G?ng?r N??L? in ?zmir- Bornova, has members from all over Turkey and the number of members has risen to 750 by the year 2005. The majority of the society formed mostly by hemophilia patients, their relatives and related medical officials. Ege Hemophilia Society also organizes training meetings aimed at the patients, their families and the medical officials. Ege Hemophilia Society is always ready to give service to all hemophilia patients and their families in our country. The patients who may be having problems can apply to us. The necessary treatments would be recommended to them and they would be helped with the analysis that are obligatory.
1. To make the society conscious about the hemophilia illness.
2. To provide the hemophilia patients with the latest developed treatment methods.
3. To provide free factor 8 for the patients who lack social security.
4. To prevent birth of the babies with this illness through methods of before birth introductions, and to lighten the burden of the family and the society by this way.
5. To rehabilitate the disabled patients and find jobs for them.
Administration Committee Members
• Prof. Dr. Güngör Nişli – Honorary President
• Prof. Dr. Kaan Kavaklı- President
• Spc. Dr. Can Balkan- Accountant
• Hemophilia Patient Mustafa Başpınar-General Secretary
EGE HEMOPHILIA SOCIETY ADDRESSES:
Postal Address: Gediz Str. No: 20, Özkanlar Şakirdağüstü Sağlıksitesi, Flat: 3, No: 303
Emergency Medical Help:
Prof.Doctor Kaan Kavaklı :Prof.Doctor Kaan Kavaklı :0542-4328738
Spc..Dr. Can Balkan:0532-6275964
Hemophilia Social Help:
Mustafa Başpınar (E.H.S. General Secretary):0532-5495858
Adem Başpınar ( E.H.W. WebMaster): 0506-2830303
ZİRAAT BANK EGE MEDICINE SECTION 87968
PLEASE DO NOT HINDER YOUR MONTHLY PAYMENTS
“EGE HEMOPHILIA SOCIETY IS THE SOCIETY OF EVERYONE!!!”